Perfection

Some of you have already read part of this on facebook. That was the
edited version though and this one, is from the heart.

I know that angels move among us because I have seen them. Sometimes
they walk on chubby little legs, have dirty faces and messy hair and sometimes
they love pickles out of the jar. The lessons I have learned from my own tiny
teacher are that no matter how much love is in my heart there is still room for
more.

I am struggling, right now, to learn the difference between ‘acceptance’
and’ rolling over’.  I have never walked away from a fight in my life, not one that mattered, and believe me when I tell you, this one matters. 

This time though, there arepeople saying “It’s just the way
it is”, “there’s nothing you can do to change it”, “It is what it is”.

I feel lost and helpless, and when I am alone, I literally fall to my knees screaming in
rage, in pain and in desperation, because I don’t know what to do. 

I’m not a doctor, I’m not a therapist, I’m not a nurse ....but I would give my life for this child.

If there comes a time when this dark new ‘label’ begins to look like anything like the cage, I fear it may become, I will know it is time to fight.  But will it be too late by then?

 I still see, absolute, God given perfection, in my beautiful boy and nothing will ever change that. When all is said and done I guess the question will be, will his own soft light, be enough to guide him through the scary shadows of this world that seems to have decided he doesn't quite fit?